Click here to read the Boston Globe article discussing the future of hand and face transplants for patients throughout the world, featuring Dr. Pomahac and burn survivors Carmen Tarleton and Dallas Wiens.More...
Next Monthly Support Meeting: Tuesday, March 10, 2015
6:00 pm - 7:30 pm
Spaulding Rehabilitation Hospital
SPECIAL PRESENTATION 6:00 pm - 6:30 pm
Diana and Jerry out dancing with friends
LIBRE—the Life Impact Burn Recovery Evaluation—is creating an innovative computer-adaptive tool for measuring progress along the path to what Diana Tenney and other survivors call “the new normal.” For the past year, LIBRE researchers have held focus groups with burn survivors and conducted in-depth interviews to generate a comprehensive pool of questions about the aspects of recovery that aren’t purely physical.
“We’re interested in identifying what some of the barriers might be, and then possible intervention strategies,” said Lewis Kazis, professor of health policy and management. “We have an adage in the measurement world that if you can’t measure it you can’t change it. So much of this becomes a question of whether you can pinpoint the needs of a burn survivor and then begin to provide them—and clinicians—with that information.”
Full article can be accessed here.
Do you have itch or pain due to a burn injury?
If you are over the age of 18, you may be eligible to participate in this research study. This study involves a method of non-invasive brain stimulation called Transcranial Direct Current Stimulation (tDCS), and is part of the Boston-Harvard Burn Injury Model System. For more information, contact Vivian Shie at firstname.lastname@example.org or at 617-952-6155.
Burn and Social Interaction
Learn strategies for addressing social interactions after burn injury
Model Systems Knowledge Translation Center
Connect with the National Institute of Disability and Rehabilitation Resarch
The mission of the National Institute of Disability and Rehabilitation Research (NIDRR) is to bring a high quality of care and improve the quality of life for people with disabilities. As part of their mission, the Burn Injury Model System contributes to the Burn Data Coordination Center - established in 1994 - gathering data from several national sites on burn care and health outcomes.
BH-BIMS and Spaulding Rehab Hospital have developed 23 step-by-step instructional videos for use in the rehabilitation of burn survivors.
Clinicians, caregivers and patients can view exercises and stretches for the ankle, knee, hip, wrist, elbow, shoulder, neck and face, including:
Viewers’ comments are important to us! After viewing the video(s) please let us know your thoughts by completing this brief survey. (Also available on the burn care instructional video website)
The Station nightclub fire
These research articles examine the factors associated with chronic pain and emotional trauma in survivors of The Station nightclub fire, one of the deadliest fires in American history that occurred in February of 2003.
Egyhazi, R., Fregni, F., Bravo, G. L., Trinh, N. H. T., Ryan, C. M., & Schneider, J. C. Chronic Pain Following Physical and Emotional Trauma: The Station nightclub fire Neurotrauma, 5 (2014), 86.
Inpatient rehabilitation following burn injury
This retrospective study is the first to examine the rehabilitation outcomes of burn injury patients who required a second inpatient rehabilitation stay in comparison to burn injury patients who had only 1 inpatient rehabilitation admission.
DiVita MA, Mix J, Goldstein R, Gerrard P, Niewczyk P, Ryan CM, Kowalske K, Zafonte R, Schneider JC
Rehabilitation Outcomes among Burn Patients with a Second Admission to an Inpatient Rehabilitation Facility. PM R 2014 May 28. pii: S1934-1482(14)00241-X. doi: 10.1016/j.pmrj.2014.05.010. [Epub ahead of print]
Schneider JC, Mathews K, Ryan CM., Gerrard P, Goldstein R, DiVita MA, Niewczyk P, Ryan CM, Mix J, Kowalske K, Zafonte R, Schneider JC. Validity and Reliability of the FIM instrument in the inpatient burn rehabilitation population.
Arch Phys Med Rehabil. 2013 Aug;94(8):1521-1526.e4. doi: 10.1016/j.apmr.2013.02.019. Epub 2013 Mar 5
Purohit M, Goldstein R, Nadler D, Mathews K, Slocum C, Gerrard P, Niewczyk P, DiVita MA , Mix JM, Ryan CM, Zafonte R Kowalske K, Schneider JC.
Cognition in Patients with Burn Injury in the Inpatient Rehabilitation Population.
Arch Phys Med Rehabil. 2014 Feb 28. pii: S0003-9993(14)00131-2. doi: 10.1016/j.apmr.2014.01.029. [Epub ahead of print]
Dr. Colleen Ryan and Dr. Tompkins authors of top-cited papers in burn care and research
Authors Jason J. Nam, et. al. of “Citation Classics in the Burn Literature During the Past 55 Years” identified the 100 most cited, peer-reviewed burn-related publications produced in the past 55 years in the Journal of Burn Care & Research. Ryans and Tompkins were both lead authors on manuscripts that made the list of the 100 most-cited articles in burn care, 1955–2011.
Dr Ryan’s publication, “Objective estimates of the probability of death from burn injuries” from the New England Journal of Medicine ranked 12th on the list with 215 citations, while Dr. Tompkins’ publication, “Significant reductions in mortality for children with burn injuries through the use of prompt eschar excision” from Annals of Surgery ranked 91st with 90 citations.
Read the complete article here: Citation Classics in the Burn Literature During the Past 55 Years